Once a heart kid, always a heart kid

With no cure for a childhood heart condition, Heart Kids NZ is committed to providing lifelong, vital services at no cost to ensure all those impacted will feel supported, informed, educated, and connected.

Heart families can be faced with separation, isolation, stress, financial hardship, and loneliness during their journey. The future is uncertain, and these families need support.

“You’re not really ever out of the woods,” says Rebecca Gourlay, Maya’s mum.

Heart Kids NZ is the only national organisation in Aotearoa NZ dedicated to providing that support.

We help at every step of the journey; from diagnosis, through childhood, the teenage years and into adulthood. Our practical and emotional support is vital in helping individuals and families cope with the day-to-day challenges of living with a childhood heart condition.

Become a Member

Our Heart Community

More than 14,000 people make up the Heart Kids NZ whānau. Together, we’re creating a community where no one faces a childhood heart condition alone.

🤍 Heart Children, Teens, Adults and Whānau

Living with congenital and acquired childhood heart conditions, and supporting one another through every stage of the journey.

🤝 Family Support Taituarā

Providing practical and emotional support in hospitals, communities, and homes throughout New Zealand.

🌟 Volunteers

From camp and event volunteers to community supporters, helping families connect and creating memorable experiences.

💙 Heart Heroes

Donors, fundraisers, corporate partners, and ambassadors who make our services possible and keep them free for families.

🛡️ Board Trustees

Providing governance, leadership, and expertise to help Heart Kids NZ deliver lasting impact.

Want to join us?

Whether you’re a heart family, volunteer, supporter, fundraiser, or partner, there’s a place for you in our community.

Nau mai, haere mai – welcome to Heart Kids NZ.

Brave Hearts Standing Tall

Read inspiring stories from heart children, teens, adults, and families who have faced challenges with courage, resilience, and hope.

Filter

Max’s Heart Journey

From heart surgery at three, to Karate World Champs at 15.

Aiden’s Heart Story

Aiden has spent more of his life in hospital than at home.

Zhengzeng’s Heart Story

For 18 months, Zhengzeng needed round-the-clock hospital care. Today, he is an active boy.

Sophie’s Heart Story

Samantha Franklin is sharing the story of Sophie, her heart angel daughter.

It truly takes a village

Every donation, fundraising effort, partnership, and act of support helps us be there for heart children, teens, adults, and their whānau when they need us most.

Together, we can ensure no heart family has to face their journey alone.

$12

Equals $1 for each child

diagnosed with a heart condition this week

$25

Gives the gift of a Maia Bear

to a child after their first open-heart surgery

$50

A week’s worth of practical support

for a heart parent as they sit by their child’s bedside in hospital

$100

Specialised counselling

for heart families needing extra support

$250

Provides food and travel support

for an out-of-town family while their heart kid is at Starship

$500

Send a heart kid to camp

no matter where they live in Aotearoa NZ